The Need for NMAC Arises

1983-1984

Dr. Beny Primm, NMAC's Board Chair Emeritus and one of the world's leading experts on HIV/AIDS, is named president of the Urban Resource Institute, which supports community-based initiatives and social services for battered women, the developmentally disabled, substance abusers and those infected with AIDS. Primm is the director of the Addiction Research Treatment Corporation (ARTC), which he founded in 1969.
 
Federation of AIDS Related Organizations formed and the first ever AIDS Candlelight Memorial is held. In San Francisco, the first woman is diagnosed with AIDS. The Orphan Drug Act is passed (and administered by the Food and Drug Administration) to encourage pharmaceutical companies to develop therapies for rare diseases, including AIDS.
 
The KSOI Task Force holds its first meeting on blood transfusions and AIDS. Hemophiliacs who used blood concentrate to treat their condition exposed themselves to as many 5,000 blood donors at any given time. The FDA released its first blood screening guidelines, which barred people from high risk groups from donating blood.
 
The AIDS Resource Center in New York City establishes a program to find emergency housing for people with AIDS; this program later becomes Bailey House.
 
In May 1983, doctors at the Institute Pasteur, in France, led by Luc Montagnier
(right with Robert Gallo at the 2006 United States Conference on AIDS), announce
that they have isolated a virus called LAV, that they believe to be the cause of AIDS.
Though unnoticed in the press at the time, a sample of the virus is sent to the CDC.
 
The first AIDS hotline is set up by the Department of Health and Human Services.
 
Due to fears around AIDS, funeral homes nationwide refuse to accept or embalm the bodies of those who died of AIDS. Families and friends are forced to cremate their loved ones.
 
GMHC and Lambda Legal Defense Fund in New York file the first AIDS discrimination lawsuit.
 
The first bill specifically funding AIDS research and treatment is passed. Congress, through the Subcommittee on Human Resources and Intergovernmental Relations and the Subcommittee on Science and Technology, initiates the first investigation into the Regan Administration's failure to adequately address the AIDS epidemic and the lack of funding and support.
 
In September 1983, the CDC released its first guidelines for health care professionals around the prevention of "AIDS transmission."

 
March 30, 1984
Canadian Gaetan Dugas (left) dies of AIDS-related cancer. Dugas participated in a number of informational interviews with the CDC about his illness and sexual relationships. Researchers there dubbed him patient "O", short for "Out in California". Unfortunately, others interpreted the diminutive to read "Patient Zero", leading many to believe Dugas had single-handedly brought HIV to the United States. Randy Shilt's 1987 book, And the Band Played On, furthered this urban legend by portraying Dugas as a near sociopath bent on infecting others.
 
April 23, 1984
Margaret Heckler, US Department of Health and Human Services Secretary (right), announced that Dr. Robert Gallo of the National Cancer Institute had isolated the virus - HTLV-III - that was the "probable cause" of AIDS, a year after a French team had discovered the virus, which it called LAV.
 
In her statement, she also announced the pending release of a commercial test for the virus and, hence, AIDS, and stated that a vaccine would be available in two years. She ended her speech with "yet another terrible disease is about to yield to patience, persistence and outright genius."
 
Patents were filed that same day covering Gallo's work, even though there was a very real possibility that HTLV-III and LAV were the same virus.
 
The AIDS Action Council is formed by small group of AIDS service organizations from across the United States.
 
San Francisco officials order bathhouses closed, sparking nationwide debate.
 
The CDC recommends abstinence and a reduction in needle-sharing among IDUs to slow the spread of AIDS.
 
In May, Bobbi Campbell of San Francisco and Michael Callen of New York City, attended the Fifth National Lesbian/Gay Health Conference, which included the Second National Forum on AIDS and the First National American Association of Physicians for Human Rights (AAPHR) Symposium. Campbell and Callen led members of the Patient Advisory Committee of the Second National AIDS Forum in creating a list of PWA rights. These became known as the Denver Principles and served as the foundation of the National Association of People with AIDS (NAPWA).

Special Note: Paul A. Kawata, head of NAN and later Executive Director of NMAC, is the last surviving member of the original group who founded NAPWA.
 
The World Health Organization (WHO) facilitates the first European AIDS meeting, in Denmark. There, it was announced that 2,803 AIDS cases were reported in the US alone. By the end of 1983, that number had risen to 3,064; 1,292 had died.

From 1983-1984, there are 4,737 known deaths from AIDS in the United States. Ronald Reagan still had not said the word "AIDS" in public. Philosopher Michel Foucault also died of the disease as well during this time.