I made a mistake in last week’s piece on the Minority AIDS Initiative (MAI). I believe good leadership is owning your mistakes and working to fix it. As you probably know, I am not an epidemiologist. However, NMAC will always follow the data and the science and the data I shared last week did not capture the impact that MAI has by race/ethnicity. Here is the corrected data that I received:
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Too often, Asian Americans are incorrectly labeled as the “model minority.” The label minimizes our pain and the challenges we face living in America. Some of us could assimilate, but too many continue to live in poverty, especially people with limited English-speaking skills.
The rise in violence and discrimination against Asians was just another example of the world going crazy. How much more stress, recriminations, and loss can America endure? We are all living on the edge waiting for the next shoe to drop. Would Asians fight back? Would our friends stand with us? Would the President stand in solidarity or blame us for the virus? Please watch this video of an older non-English speaking Chinese American who fought back.
TW: Violence, and Anti-Asian Hate Crime
Don’t mess with “Grandma.” Under similar circumstances, I’m not sure I would have her courage. I definitely understood her pain. It is the pain that too many Asians and too many people of color carry. “Why do people hate us just because of the color of our skin, our accent, or where we were born?” These are not things I can or want to change, but they make so many people angry and define how many Asians show up in the world.
I am the executive director of the National Minority AIDS Council, yet I am still asked to get people’s drinks or hang their coats. Part of why I dress so outrageously is so guests understand that I am not the help. Even at the United States Conference on HIV/AIDS, I’m still asked to get coffee for a table during plenary sessions. It’s taken a long time for me to learn to speak back and now you can’t stop me. Too many Asians cannot speak up. My parents were interred for nothing more than being Japanese. They taught their children the hard lessons they learned from that experience. Keep your head down, try to blend-in, and never speak up.
That’s why I am so inspired by the Asians who are fighting back and the people who are standing in solidarity. People of all races, genders, gender identifies, sexual orientations are standing with the Asian community like never before. Thank you to everyone who posts on Facebook, makes a donation to an Asian nonprofit, attends a vigil, or just talks with their friends. You know your real friends when the s*** the fan (that is so Japanese).
This experience taught me that leadership matters. The President matters. The Vice President matters. I am so proud of the Asian American elected officials who are speaking out. For too many this is their first time on the national stage. Watching the tears of Representative Grace Meng (D-NY) as she called out a member of Congress for hijacking the hearing was an incredible moment. Her words were both heartbreaking and empowering. Her courage to stand up to power and take back the hearing reminded me of warriors like Maxine Waters and Nancy Pelosi.
This is the legacy of racism that is breaking the fabric of our society. How many people have todie? Unfortunately, the answer continues to be that our lives don’t matter. Calling out anti-Asian violence is interconnected to NMAC’s fight to lead with race to end HIV. None of us can do it alone and we’ve got to figure out how to work together. Divisions are killing us and our communities.
Yours in the struggle,
Paul Kawata
NMAC
I’m getting my COVID vaccine today. Words cannot adequately express my gratitude. The vaccine means I get to live. I get to survive another pandemic. I sobbed when I got the news. However, I am also painfully aware of my first world privilege. As the HIV movement did after the International AIDS Conference in Durban, South Africa, we must now stand in global solidarity for Covid vaccines for the world. NMAC is truly thankful to Congress and the President for the $3.5 Billion for the Global Fund and $250 million for PEPFAR that was part of the American Rescue Plan Act. As we tested the COVID vaccine using the HIV vaccine infrastructure, we will now use the international HIV infrastructure to address COVID worldwide.
Leadership Matters. As we are seeing first hand, leadership matters when working to end a worldwide pandemic, leadership and money. The same is true for ending HIV. Are you the leader our movement needs to end the HIV epidemic? Ending HIV requires tens of thousands of leaders. However, they may look very different. The HIV community is not exempt from the hopes/tensions the country feels about race and Black Lives Matter. It’s the struggle for the soul and future of America. COVID showed the need for better, different, expanded healthcare infrastructures. Not just health services, but as HIV taught us, much-needed wrap around services like housing, mental health and food security. Our movement needs to build and support agencies that not only end HIV, but also address the multitude of challenges facing our community. COVID shined a spotlight on the lack of healthcare for too many. Agencies need to expand their mix of services to address multiple needs in our diverse communities.
Communities have diverse needs. They can’t and won’t go to multiple agencies for different services. After COVID, community expects to get services virtually, yet the digital divide is real. Getting an appointment for a vaccine depends on access to technology, yet too many in our communities do not have this access or speak English as a second language. Consumers want agencies that provide a multitude of services, in multiple languages. Organizations must be prepared for change. Some of us are dinosaurs and don’t want to adapt, but we won’t have a choice. The world is changing and there is a right and wrong side in history. To be clear, I’m not saying all older executive directors need to resign, but they do need to look at the role they are playing in fighting or maintaining systems that oppress too many. I believe COVID has changed more than where we work, it has changed what we value and who we want to be. Like so many, I made a pact with God that if I survived COVID, I would be a better person. I would fight harder for my community and not be afraid to ask for grace.
COVID also highlighted our differences. Some people always wore a mask, others usually, and too many never wore a mask. Sound familiar? Substitute condoms for masks and it’s the identical question. We’ve learned how hard it is to get everyone to wear masks and condoms. Yet we can’t give up on either. Until everyone gets the vaccine, we need them.
Thank you, Mr. President for your words about the potential for a more normal 4th of July, for letting me dream. After my vaccine, I look forward to watching the fireworks on the national mall. We still do not fully understand the changes that are about to happen in our world. It seems impossible to go back to the way things were before COVID. How life will change depends on our ability to absorb and integrate the lessons of COVID, the lessons of Black Lives Matter, and the lessons of losing everything. COVID exposed the inequities in the world and hopefully we can no longer look away. As we have seen, access to healthcare is not a luxury, it is a core value for all Americans. Now we understand the need to improve the healthcare infrastructure for all communities. Like the world used the infrastructure for HIV vaccines and the Global Fund, maybe it’s time to use the domestic HIV service infrastructure to buildout our COVID services. Healthcare by itself is not the solution. Domestic HIV services documented the critical importance of wrap around services like housing, mental health and food security. How do we take the lessons learned from HIV and use it as the foundation to build the healthcare infrastructure needed in America after COVID?
Yours in the struggle,
Paul Kawata
NMAC
Jezreal Rodriguez Anderson
Program Coordinator
I am tasked with writing an article about Gay Black men, one of the hardest things I must do to date. If I were asked a year ago, it would be the easiest thing in the world, back when my life revolved around being what I deemed a “Black Gay Man.” However, as of recently, I am at a loss for words when it comes to this idea of Black gay men. As much as I crave the community of other Black gay men, I also fear it. I fear that the relationships I build will hurt me and I fear that the life I always thought I wanted was something that did more damage than good.
As funny as it sounds, when I got to college, I thought I was an anomaly. I thought as a Black Gay man I was the conundrum that people only heard about in myths. Up until this point, there were no Black Gay men in my life to befriend and as someone who went to a 100% African American school, I never found another man I could find solace in over my sexuality. TV shows like “Queer as Folk,” a program I snuck to watch, did not have Black gay characters and Davey Wavey, the white gay YouTube star I looked up to, did not discuss race, so going to college I was the only Black Gay man in the world and, oh, how that task.
That all changed when I took a break from my white institution and engulfed myself into the world of the District of Columbia. During my break from school, I built strong relationships with some Black Gay men who became my idols. It was the first time I saw Black men who were fully comfortable in their own sexuality and I wanted it. It was not long after that I realized that the same people I looked up to were also the people who would let me down.
As humans, we build ourselves based on the relationships we make. In 2021, being gay and being socially expressive is something that is still new in our world. We are in an era where we are still learning what it means to be Gay and what it means to be in a healthy relationship and, sometimes, we fall short of that. We as youth look up to individuals who are still looking for their own identity. The truth of the matter is, we go from being “straight men” to fucking them and there are issues that come with that.
Even though I have spent four years being in the Black community, I can tell you I still say have no idea what it means to be a Black gay man. For me, sometimes it is putting away my sexuality for the greater good of the community or being so gay that other Black people do not even acknowledge it. For some, it is doing lines of coke in the bathroom with their good friend and for others it is praising God during Sunday worship. None of these experiences are right and none of these experiences are wrong but they are the reality. As Black gay men, we are not a monolith, we are individuals; that is the most important part of this story.
A lot of Black gay men, including myself, will conform to what society deems a Black gay man is and then spend a lifetime trying to find our own selves. We look for the leaders in our community only to find they still cannot lead themselves. We look for intimacy through sex instead of just learning the importance of being in each other’s presence. It is time for us to find our own idea of what makes us Black and gay.
Sometimes I say too much and sometimes I do not say enough for fear of judgment. Some days I crave the relationship of other Black Gay men and sometimes I crave the intimacy I never gave myself. This chapter of my life being a Black Gay man means being my own self and having a keen sense of that. If we want to stop HIV, we need to first stop denying ourselves from healing first. Many of us are battling mental health issues, substance abuse, sex addiction, financial instability, and many other demons that are very valid and real. I can say, in the past five years, as strong as my relationship has been with other Black men, I can count on one hand the times someone asked me, “when was the last time you took your meds,” but I can tell you the last time someone asked me for a line of coke, or even the last text received about a “wild” sex party (that I might have gone to). I do not fault any of these individuals because this is their narrative and story. However, right now as a black community, we need to assess what are healthy habits and what are vices we are using to cope with deep hurt.
When you are searching for love, as all people do, sometimes we are willing to jeopardize our whole self to make that a reality. We will jeopardize our morals, our ideals, and, most importantly, ourselves for fear of being weak or alone. I know that is what I did until I realized that nobody could make me whole but myself. I found that all the unhealthy habits that were just for fun prior to COVID-19 became the same vices that I did alone when nobody was looking. I realized that all the love I thought I needed from others was not the love I give myself. To be honest, in 2021, we are not focused on how to stop HIV; we are focused on how to stop doing our vices before they kill us. If we do not forgive ourselves and understand that we are worth living for, then we will never see the importance of making sure we manage our HIV and take our PrEP. As Black gay men, no narrative is the same and to be empowered is to realize that, as an individual, you find it important to live a motivated life.
In all, the Black Gay community has so much beauty and many niches that have and continue to shape society. I am really blown away by the Black gay leaders in the community who take noes and turn them into yeses. Even through our hurt and ostracization, we get up each day and try to survive in the best way, in a world that wants us dead. When I first started this journey as a Black Gay Man, I thought I was the only anomaly, but I come to realize every person in my Black Gay community is too. We are all hurt and we have all hurt other, yet we still love and forgive. We ignore our own hurt to let others shine and that’s the beauty of it. In every mess you can always find beauty, and I am just as messy as the rest and it’s what make all of us so great. During this Black History Month let’s work on holistic healing. Let’s work on facing our fears head on and to become the person we are meant to be. Let’s work on realizing as a Black Gay Man you hold the power to move mountains and shape history. That is what I want to see this Black History Month: healing and self-love!
Lauren Miller
Health Equity Program Coordinator
Are we ready to lose the chains of white supremacy that have bound Black folks and prevented us from reaching our greatest potential?
Are we ready to topple, desecrate, and destroy every idol, statue, and name inscribed that caused harm to black folks?
Are we ready remove to white supremacists from their seats of power; unapologetically?
Are we ready to restore the black communities left behind and destroyed by the crack epidemic?
Are we ready to close the jails and privately owned prisons that have capitalized off of black bodies?
Are we ready to right the wrongs caused by the medical community that have led to mistrust?
Are we ready to provide reparations to the ALL the descendants of enslaved Africans?
I am ready. I believe America is ready. And if you ain’t ready, I hope you get there soon or you will find yourself on the wrong side of history.
“We have nothing to lose but our chains”
For 400 plus years in America white supremacy has reigned and kept us all behind. WE all saw what happened at the Capitol. And the world saw it too, live and in color.
The revolution will not be televised……
but the insurrection of disgruntled hateful white supremacist will be
AMAN and AWOMAN
White Supremacy could no longer be hidden, burned, discarded, lynched, and erased from history.
It is now. It is us.
But we are not the same.
Our ancestors have taught us so well.
Marsha, Martin, Malcolm (thank you for your radicalism, your beauty, your sacrifice).
It is their voices that guide us as we fight to liberate every black body, and we don’t intend to leave nobody behind.
Mumia, Matulu, Janine (thank you for your radicalism, your beauty, your sacrifice)
Terrell Parker
Associate Program Manager
A few days ago, I started primary care with a new doctor. I recently relocated back to Indianapolis now that my job is virtual. When my doctor walked into the room, she asked me about the blood pressure medication I take, and then she asked…… “so I see you want to be prescribed PrEP, tell me about that?”
Me: “Well, I’m gay. I have receptive anal sex, and I sometimes don’t use condoms. This puts me at high risk for HIV, so I take PrEP.”
Doctor: “Okay, great.” (trying to mask her shock and surprise).
Me: “Have you ever prescribed PrEP?”
Doctor: “No, this is my first time.”
Me: “Well, you want to do an HIV test on me, full STI screening, check my kidneys, and…”
Doctor: Laughs.. “Thanks, but I asked a colleague and he walked me through the process already…”
Me: “Great, if other people in your practice need some education, I can refer you to a PrEP providers training program.”
The rest of the conversation went pretty well. I walked out of the doctor’s office with an order for PrEP called into the pharmacy less than a mile from my home. A few years ago, this was not my reality. As I drove home, I couldn’t help but reflect on how far I’ve come. I couldn’t help but recall the days before I had quality health insurance, before I had a car to easily make it to appointments, and before I had the education to advocate for myself.
My journey towards PrEP has been long. I first learned about PrEP attending an HIV prevention conference in 2014. Five years later, I finally began PrEP in November of 2019. Before coming to NMAC, I was a young professional just starting in the HIV workforce. Like many beginning professionals, I worked for a low salary and no health insurance benefits.
After learning about PrEP, I made it my mission to increase awareness in my local community.
I began educating anyone who would listen. I held community talks, focus groups, launched a PrEP campaign, and helped develop internal processes/external partnerships to increase PrEP referrals and navigation for young, Black gay/bisexual men and transgender women.
Even as I worked to increase PrEP access in my community, I faced the reality that PrEP was not accessible to me. No health insurance meant no PrEP. I knew, however, when I did have access to insurance, I was going to start PrEP—period. I just needed to hold on to my negative HIV status long enough to get a prescription.
PreP gives us the power to transform our narratives and rewrite history as Black gay men. Many of us have heard the CDC projection, “½ of Black gay, bisexual men will contract HIV within their lifetime” if current trends in HIV acquisition continue. PrEP is a powerful tool we MUST use to change this trajectory. We will only change this, however, if everyone who wants PrEP has the access, resources, and support to sustain PrEP uptake.
PrEP has been revolutionary for me. I think back to 2011, being madly in love with someone, and having that person tell me they could no longer be with me because they feared transmitting HIV to me. Fast forward 10 years, and I have proudly and openly dated people living with HIV with no fear of HIV transmission. PrEP gives us the power to take control and finally enjoy a health sex life free of fear and shame. I have never enjoyed sex and intimacy as much as I have since starting PrEP.
In honor of Black HIV Awareness Day, we must ensure everyone can be a part of the revolution. My experience today is still not the experience of most Black gay men I talk to who want to access PrEP like my friend, who told me this weekend his primary care doctor first refused to prescribe him PrEP and later tried to dissuade him due to him not “being a good fit” for PrEP. Thankfully, he did not listen. He persisted and now has an appointment to being PrEP this week.
We must ensure everyone has access to adequate health insurance and informed care providers.
The COVID vaccine roll-out is another gift from the Trump administration. They punted to states to implement vaccine roll-outs not understanding or caring that states were already overwhelmed managing COVID testing, healthcare, and deaths. NMAC is particularly concerned about access to the vaccine for people living with HIV. We have already heard reports of PLWH who were turned away from getting the vaccine because they were immune compromised, stories of PLWH who were told that taking antiviral meds was contraindicated for the COVID vaccine. Like so many in this country, people don’t know whom to trust.
Talking with a federal colleague, I was told that “people with HIV should be in the 1c vaccine category, if not 1a or 1b for another reason.” Unfortunately, the state by state roll out currently underway has resulted in different policies and timelines. As a result, NMAC made an appeal to the CDC asking them for clarification. Our movement needs to push to ensure PLWH are classified as 1a so they can have immediate access to the vaccine. This is particularly important because PLWH are aging and too many suffer from age advancement due to meds. There are also too many PLWH who are still immune compromised and need to move to the front of the line.
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A President’s Inauguration is usually a joyous moment of celebration, at least for the winning party. Because of COVID, unemployment, and the raid on Congress, there is little happiness or the mood to celebrate. I just want this inauguration to be over as quickly and safely as possible. There is lots of work to be accomplished.
The Biden’s administration number one priority has to be COVID and getting control of the pandemic while rapidly getting out the vaccine. If we’ve learned anything from this experience, we learned that we weren’t ready and too many people died because of it. The Centers for Disease Control and Prevention (CDC) has a long way to go to repair its relationships, both internally and externally. I asked the Biden transition team focused on the CDC to make sure the new director, Dr. Rochelle Walensky, addresses the toxic culture of racist aggressions outlined in a July 2020 New York Times article. NMAC supports their request that the director declare “racism a public health challenge.” Not only will that go a long way to heal internal issues, but it will also put the CDC in alignment with the Biden administration.
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Last week President-elect Biden officially committed to reinstating the Office of National AIDS Policy (ONAP) at the White House. Now is the time for the HIV community to weigh-in, particularly since this leader will be the President’s representative in our struggle to end the HIV epidemic (EHE) in America. NMAC hopes the Biden administration will consider ending HIV as an integral component of their commitment to racial justice in America.
Here are some of the critical skills that NMAC hopes for the leader of ONAP:
This list is far from comprehensive. What would you add? Let me know because NMAC is writing another letter to the Biden transition team this week. However, our work cannot be limited to ONAP. The President-Elect has already begun announcing his nomination for senior leadership roles and will appoint new leaders immediately after the inauguration. The civil servants will craft the way that we not only do business in Washington, but how America will function both domestically and around the world. We want to encourage each of you to get involved in building our country – from employment to advocacy. Our voices and our bodies are needed to End the HIV Epidemic. Now is our time.
2021 Virtual Biomedical HIV Prevention Summit
The 2021 Virtual Biomedical HIV Prevention Summit is March 30-31, 2021. This year the conference prioritizes implementation of of PrEP and U=U as the core services for ending HIV. While there is a COVID vaccine on the horizon, it is not in time for this year’s meeting. However, NMAC hopes we can have the 2021 United States Conference on HIV/AIDS in person in Washington DC on September 9-12. It will be an important opportunity to introduce members of the Biden administration to the HIV movement. We are closely monitoring the roll-out of the COVID vaccine and hope to make a final determination about meeting “in-person” in February.
The 2021 Summit will give out 1,500 scholarships to the virtual meeting. People living with HIV and people on PrEP will be prioritized. Click here to apply. NMAC understands the central role they play in ending the epidemic. The 2021 Summit goal is to bring leaders from the various target communities together with the staff responsible for EHE program implementation. Hopefully they are the same people, but too often this is not true. NMAC thanks Gilead for being the Presenting Sponsor for the 2021 Summit.
NMAC’s Hill Champions Event
Thank you to everyone who attended NMAC’s Hill Champions fundraiser. If you were unable to join us, please watch the event for free here. NMAC thanks Speaker Nancy Pelosi and Congresswoman Barbara Lee for the leadership our movement needs from them. It will be a very heavy lift to get full funding for our efforts to end the HIV epidemic.
NMAC needs your support as we get set to work with the new Biden administration. Please text NMAC to 50155 to donate. Thanks to a $20,000 
matching challenge from NMAC board members Norm Nickens and John Hill, your donation will be doubled. We were able to increase HIV support by hundreds of millions of dollars in the Trump administration. Imagine what we can do during the Biden presidency. Thank you for your support and please be safe during these stressful times.
Paul Kawata
NMAC
